Despite the rareness of Mastocytosis, there are several very active and helpful support and informational sites on the internet. Such as mastcellaware.com and tmsforacure.org
More coming soon, but just to get started here are a few groups on Facebook and some links to helpful information:
Arizona Mast Cell Support
Mast Cell Activation Disorder (and related conditions)
Mastocytosis Awareness and Support
Mastocytosis and Mast Cell Disorders-Integrative and Holistic Approach
The Masto Family
The Mastocytosis Society
Positive Support for Mast Cell Disorders
A lot of people with MCAD are apparently also Sal sensitive. This is a really helpful website I've been looking at as I wait to start Gastrocom, in the hopes that it will allow me to be healthy enough to start introducing new foods in again:http://salicylatesensitivity.com/
Some people have IgE mediated allergies, which is different than mast cell disorders, but can present in some similar ways. You can learn about IgE mediated Type I hypersensitivity here: http://www.youtube.com/watch?v=KX4DUIfurkk
Some people have IgE mediated allergies, which is different than mast cell disorders, but can present in some similar ways. You can learn about IgE mediated Type I hypersensitivity here: http://www.youtube.com/watch?v=KX4DUIfurkk
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